Loud Noises!
Most everyone knows how Bella hates loud noises. It started way back in the NICU. She would startle when loud things happened. She would flip out when someone closed a 3-ring binder loudly. Even once home, loud velcro used to make her shake.
Fire engines are cool. Fire engine sirens? Not so cool. Up until I told her that the sound means that someone needs help and the firemen are going to help them. Then they were OK.
Recently, Bella experienced a Fire Drill at school. She was a wreck and spoke of nothing else for days. And days. And days. So much so that her preschool teachers e-mailed me to ask that we talk to her about it at home, to help her feel more comfortable.
Right. As if we'd talked of anything else since.
Yes, my child was the child in preschool in the corner rocking, saying, "Never hurt Charlie Babbitt."
OK, Rainman she's not. Not really. She's more subtle. "I have a question..." "You remember the day the loud buzzer went off?" Every time she had my attention, her dad's attention, or the attention of one of her teachers. Possibly she spoke of it to the other kids, I'm not sure.
Well, we were just beginning to see the light at the end of the tunnel on that one. She was beginning to speak of other things, like the seasons, the icky sticky bubble gum song, etc.
Bella has missed both days of school this week, because she has a wicked cough. She's on antibiotics, but she was coughing herself crazy, I she's on her inhalers, too. Poor girl.
She's been on the same inhaler of albuterol for these almost 2 years of occasional use. Last night she had some of that and some flovent right before bed, but by 11 p.m. they were no longer helping and she coughed herself sick. Twice.
I was just about to flee to the emergency room when I decided to try the new albuterol and some steam, to see if that would help.
Within a minute of the new albuterol she wasn't coughing at all, where she had been barely able to get a breath without coughing before. So, we relaxed in the steamy bathroom for a while and enjoyed how warm and nice it was.
After a while, I told Bella to hop in bed and that I'd be right there with the cool mist vaporizer. She did. While I was running around getting the vaporizer set up, and putting Bella’s white blanket in the laundry chute, the smoke detector outside the bathroom went off.
In fact, I was directly under it, less than 3 feet away when it started and I nearly lost it. I was so tired and it was so loud and surreal. There I was in the hall flailing a pukey baby blanket to clear the steam, shutting the bathroom door, cursing myself for my stupidity, when it finally stopped.
I went about getting the water for the vaporizer, unaware that my daughter was cowering under her blankets, shaking like a leaf.
Andrew talked her down. I felt like the worst parent of all time. I know loud noises scare her, I had been scared, but it hadn't occurred to me to go to her once the alarm was done.
I was so shaken; I didn't sleep. I couldn't fall asleep.
Bella and I would have a few more visits last night. More coughing jags, leading to more albuterol. She even asked me to sleep with her for a while, and I did. Well, I didn't sleep, but I did stay with her while she slept. I held her. I held her hand. I held her down when she woke flying off the bed and shaking like a leaf, as if being electrocuted. I told her I was there and everything was OK.
Around 4:30 a.m. she decided she was fine. She wasn't coughing or scared anymore, and I got to return to my bed.
Every parent has been through this kind of thing. Right now I'm thinking of Jodi, when Ethan was having febrile seizures. It is so painful to see your children sick or scared or both. Last night I found myself cursing Bella's prematurity. Cursing myself for my own stupid mistake with the smoke detector.
At 4 years old, 99% of the time I can just think of my girl as a healthy, smart, strong, beautiful girl. Then that sneaky 1% of the time, I am forcefully reminded of the long, hard road she's had to get to 4. Of ventilators, a pulmonary hemorrhage, pulmonary interstitial emphysema, collapsing her lungs on purpose, a drainage tube running from her tiny lungs to the outside of her little body, and the vague and ominous diagnosis of chronic lung disease.
I am reminded what a miracle she truly is and that I need to renew my efforts for the March of Dimes. Being a parent with a sick child is hard enough, without all the extra baggage.